Sunday, May 10, 2015

The Light at the End of the Tunnel and a Little Sympathy

No, not that light at the end of the tunnel!!!


We decided as a family it was time for a sympathy mission.  J has had to endure so much through his chemotherapy.  We decided it would be great for all of us to be hit with nausea, vomiting, maybe some diarrhea, lots of aches and pains.  That's how we spent Saturday.  This suffering would get us a little closer to J.  Actually it kept us away from the hospital all day.  His grandma was the only one who wasn't sick by Saturday afternoon and she stayed at the hospital overnight.  She woke up feeling sick.  Happy Mother's Day!

Today is the last day to stay in the hospital!  This is the light at the end of the tunnel!  The chemotherapy should end around 7:00 or 8:00 tonight and then we will take him home.  He's wanted puff-oven pancakes for sometime, so maybe we'll have a late dinner.  Tomorrow he gets his very last spinal tap with his very last dose of chemotherapy!

So what's left from here?  He will still go through his low blood counts and be at risk for infections.  He still needs to get shots every day until his blood counts have returned.  After his blood counts have returned he still has to get work on his kidney stones and get the stent out, which will be an operating room case.  Until the stent is out, he will continue to have to take antibiotics to prevent getting a significant infection.  Sometime in June he is going to get a repeat PET scan.  We will see if there is anything changing about that spot that had activity on the last scan.  If it hasn't grown any, I'm pretty comfortable with it not being lymphoma.  If it's grown, then we are celebrating too soon.  After the stent is out, he will still need to take antibiotics every weekend for about 6 months, because he is still at risk for certain types of infection in the lungs.   I have no idea how long after that before he is fully recovered, but I think it's safe to bet that he's still having effects from the chemotherapy at Christmas.

In spite all that, today is a day to celebrate!

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