The last several days have been a great blessing. J has been feeling pretty well. He still gets some pains related to the kidney stones or the stent, and he still isn't what he was before this all began, but in the last two months he has not been better than these last few days. He takes medicine without a fight. He reads books (including finishing two books in three days from a series his class from school gave to him). He plays games with his siblings. He laughs. He eats. He eats more. He went to his sisters' violin and cello recital. He is even planning on attending part of church tomorrow. It's sad that we go back in for the next round of chemotherapy on Monday and beat him down again. But this moment is a cherished treasure for us, and a reminder that eventually life can become more normal. It will never be the same as it was because every experience will change us for better or for worse. And who says that we want to be the same as we were before?
He takes a medicine to alter the pH of his urine to dissolve the kidney stones. It's been more exciting than titrations in chemistry lab. The medication he takes was started as one whole pill three times a day. Way over the target. We are now down to 1/2 a pill twice a day and just sitting at the upper end of his target pH (1/3 the recommended starting dose). Hopefully the testing strips are accurate!
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