Friday we officially finished the second round of chemotherapy. J went back into clinic to have another dose given through a spinal tap. We like to think we are learning. J was not allowed to eat anything this time (last time he ate breakfast, whoops). He let us know that he was quite hungry all morning. While he was asleep for the treatment they took out the remaining staples in his belly incision.
We have already started giving the shots to tell the bone marrow to wake up and produce new blood cells. J hates it. Mom does a great job with it.
We're tapering the steroid dose, as it is not safe to stop cold turkey. Better to gradually decrease the dose. Sunday morning is his last dose. We crush the pills and put them into capsules. Since he has been home, he has taken these without much of a fight. He saves that fight for some of his other medciations.
On weekends he takes a few doses of an antibiotic just to help prevent infections.
Twice a day he has to use a mouthwash to help prevent the development of cankers.
He doesn't feel like going anywhere, even if we can keep him reasonably safe from catching an infection. He would prefer to just stay home. We have realized that we need to be cautious about where even our healthy children go.
It's really hard to believe that we have been at this for 6 weeks now.
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