Saturday, March 7, 2015

Weekends

Wednesday when we brought J in, and Thursday as we were first getting information, we thought that perhaps we would be going home today, Saturday.  Not going to happen.  He had fevers again last night.  We still don't have the final identification of the bacteria we are treating, so he remains on the big gun antibiotics.  He still has no white blood cells.  His mouth is still sore.  We still have to spend a good 30 minutes to convince him to take his medications (in his defense, it's rough when the "cure" exacerbates the pain in his mouth from all his sores, it's not just childish whining).  His platelets continue to drop.  He has more pain in his belly.

On the good news side of things:  His red blood cells are increasing.



OK, there are actually more things that we can find that are good.  But we almost have to call on Pollyanna to find the good in this situation right now.  He likes yogurt, and we discovered a never-ending supply of Go-Gurts.  He has drank a couple Boost drinks (although he does not like them).  He gets to sleep from time to time.  His blood pressure has never dropped again.  He is no longer taking steroids!  Disney Channel keeps him entertained.  We have one of those awesome bladeless fans in his hospital room.  The snow is melting.  I saw grass.  The forecast is for 40's to low 50's this week.  If only we can get out of the hospital!!!


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